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Second Chance at Life: The tale of two boys, one heart condition and an extraordinary bond

[Oct. 16, 2023: Staff Writer, The Brighter Side of News]

Tate Lewis and Seth Rippentrop were neighbors in the NICU as babies. Now, they're college roommates at The University of Texas at Dallas. (CREDIT: Creative Commons)

In the silent corridors of the Children’s Health neonatal intensive care unit (NICU) back in 2002, two babies, Tate Lewis and Seth Rippentrop, found themselves side by side, fighting for their lives against all odds.

Diagnosed in utero with the rare and often fatal condition known as hypoplastic heart syndrome, they each had a mere 40% chance of survival. Today, not only have they survived, but they have thrived, forging a bond that has seen them through the hardest of times and into a bright future together.


Understanding Hypoplastic Heart Syndrome

Hypoplastic heart syndrome is a congenital condition, one where the left side of the heart is underdeveloped or doesn't form as it should. The ramifications of this diagnosis are severe.

Tate Lewis and Seth Rippentrop in the NICU at Children's Health in Dallas. (CREDIT: Lewis and Rippentrop Family)

"It's a defect that is uniformly fatal if it's not taken care of within the first few days of life," revealed Dr. Steve Leonard, a prominent pediatric cardiothoracic surgeon at Children’s Health. The urgency of the situation is undeniable, as the lives of the affected children hang in the balance unless timely medical interventions are sought.


Parents' Anguish

Parents of these two resilient boys recall the distressing moments when they first learned of their sons' grave conditions. Cheri Lewis, mother of Tate, remembered with a shiver, "We were terrified when we found out about Tate's diagnosis." Her voice echoed the sentiments of countless parents who have received similar heart-wrenching news.

Dr. Steven Leonard is a pediatric cardiothoracic surgeon at Children's Health in Dallas and a professor of cardiac cardiothoracic surgery at UT Southwestern Medical School. (CREDIT: Creative Commons)

Similarly, Kimberly Rippentrop, Seth's mother, reminisced about her own tumultuous journey. "I would pray, just asking God to let him come home and sleep one night," she shared, the weight of her memory evident.


A Battle Against Odds

Both boys, despite their grim prognoses, were up for a challenging journey. The intricate treatment for their condition necessitated the reconstruction of the right side of the heart, effectively enabling it to perform the functions of a complete heart. Such a procedure is daunting, to say the least.

Tate Lewis and Seth Rippentrop were born just weeks apart in 2002. Both had been diagnosed in the womb with hypoplastic left heart syndrome, a condition in which the left side of the heart has not formed correctly. Now, they are headed to college together. (CREDIT: Tate Lewis and Seth Rippentrop)

In their early days, Tate, facing additional complications like a stroke that paralyzed one of his vocal chords, underwent five major surgeries. Seth, on the other hand, endured three significant surgical procedures. Amidst the beeping monitors and sterile smell of the NICU, the mothers of these two brave boys found solace in each other's company, with their sons occupying adjoining rooms.


Resilience and Realization

Seth, reflecting on his unique journey, stated, "I was just always very aware of the fact that I had half of a heart as a kid." The awareness of their condition never held them back; instead, it gave them a perspective that many lack. "What we've been through in the past, I feel like, gives us hope," Seth added, emphasizing the strength that past challenges can provide for future endeavors.


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Their relationship, built on shared experiences and struggles, grew stronger with time. From neighboring NICU cribs to shared college dorms, their bond is a testament to their resilience.

Today, both young men are juniors at the University of Texas at Dallas, where they not only pursue academics but also engage in extracurricular activities that reflect their passions and skills. Seth, with his consistent academic excellence, has secured a spot on the dean's list. Meanwhile, Tate has channeled his energies into sports, becoming a proud member of the university's men's golf team.


The journey hasn't been without its challenges. Both acknowledge the possibility of lifelong complications due to their condition. Yet, their spirit remains undeterred. Tate expressed, "This was something we were born with and so we have to treat it with care but also we have to live life as well and set goals."

Seth's optimism shines just as brightly. "We've already defied so many odds and gone against so many expectations of what our life was going to be like, so it makes me really hopeful for the future."


Their story is a beacon of hope not just for parents and children facing similar conditions but for anyone battling adversity. Dr. Leonard summed it up best when he stated, "That's the most rewarding aspect of what we do – to see these patients reach adulthood and fulfill their dreams."

For more science and technology stories check out our New Discoveries section at The Brighter Side of News.


Note: Materials provided above by The Brighter Side of News. Content may be edited for style and length.


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